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Identification of suboptimal factors linked to failure to screen for severe congenital anomalies during pregnancy: clinical audit based on a population registry study (DEPISTACO)
Project holders
- Isabelle Monier (CRESS, équipe OPPALE, Université Paris Cité)
- Priscille Sauvegrain (Université Paris Sorbonne)
Project description
Congenital anomalies are a major cause of perinatal and infant mortality, morbidity and long-term disability. Prenatal screening for congenital anomalies plays an important role in pregnancy management and child prognosis. Nevertheless, some anomalies are not detected during pregnancy and this can have major consequences on parental decisions and the organization of care in the case of severe anomalies, defined as those lethal or those having a negative impact on the child's prognosis. In a previous study, we estimated the proportion of severe congenital anomalies not detected during pregnancy using data from the Paris congenital anomaly registry. Approximately 1 in 10 severe anomalies were not detected during pregnancy. However, this analysis did not enable us to identify the reasons for the lack of detection. This new project will develop a qualitative aspect of this research using a clinical audit. The aim is to identify the sub-optimal and avoidable factors associated with failure to screen for a severe congenital anomaly.
This project is related to the LIEPP's research group Health policies.